Danielle

For all of you that might not know our sweet Danielle has has a rough time the past few weeks.We thought that the whole ordeal with her falling into the canal last month was a scarey situation but not as bad as the last two weeks.  Her baclofen pump (the little machine about the size of an ice hockey puck that is inside of her to help her stay relaxed) wasn't working right. It was giving too much medicine then not enough so she was getting really sick to her stomach for a few days and couldn't keep anything down and then she wouldn't get enough and everything would be really tight and so she had a hard time eating. For all of you that were concerned about her weight we don't have to worry anymore. She is down to a slim 115-118 pounds. Well the doctors replaced her pump and in the process somewhere she got spinal meningitis. She was really sick and was hallucinating for about 3 1/2 days. Someone had to stay with her 24/7 during that time or she would do really crazy things. They got that under control and decided to take the new pump out because they couldn't put enough antibiotics in her to kill the bacteria. She now has an external pump that doesn't work as well as an internal. She is still pretty tight, and itchy most of the time. She picked up another bug from someone or something in the hospital and also has diarrhea now on top of it all. She is such a trouper and hopes that this Friday or next Monday the doctors will be able to put in another new pump and get it regulated quickly. They will be putting it in on her right side whereas the others were on her left side. When she does get home she will still be on a lot of antibiotics through a pic line in her upper right arm for 6-8 weeks. We just keep praying that she will be strong and get better so that we can bring her home soon. Well that about sums it up about Danielle for now.