Grandaughter Harley

Just a few pictures of our darling new addition. The week I was in Texas I only heard her cry one time. She is such a sweet mellow baby.

 

Just came home from her 1st doctor appointment and was sound asleep in her carseat.

Danielle

For all of you that might not know our sweet Danielle has has a rough time the past few weeks.We thought that the whole ordeal with her falling into the canal last month was a scarey situation but not as bad as the last two weeks.  Her baclofen pump (the little machine about the size of an ice hockey puck that is inside of her to help her stay relaxed) wasn't working right. It was giving too much medicine then not enough so she was getting really sick to her stomach for a few days and couldn't keep anything down and then she wouldn't get enough and everything would be really tight and so she had a hard time eating. For all of you that were concerned about her weight we don't have to worry anymore. She is down to a slim 115-118 pounds. Well the doctors replaced her pump and in the process somewhere she got spinal meningitis. She was really sick and was hallucinating for about 3 1/2 days. Someone had to stay with her 24/7 during that time or she would do really crazy things. They got that under control and decided to take the new pump out because they couldn't put enough antibiotics in her to kill the bacteria. She now has an external pump that doesn't work as well as an internal. She is still pretty tight, and itchy most of the time. She picked up another bug from someone or something in the hospital and also has diarrhea now on top of it all. She is such a trouper and hopes that this Friday or next Monday the doctors will be able to put in another new pump and get it regulated quickly. They will be putting it in on her right side whereas the others were on her left side. When she does get home she will still be on a lot of antibiotics through a pic line in her upper right arm for 6-8 weeks. We just keep praying that she will be strong and get better so that we can bring her home soon. Well that about sums it up about Danielle for now.

Science center in Texas

In my hurry to get pictures posted and show all the fun that we had I forgot to include any pictures of the science center that we went too. I think it's actually called the science spectrum. There was so much to see and do. A lot of different hands on displays and then the toy room. The boys played in there for about an hour before wanting to explore other stuff. I have been there before with Trevor's family but it was Shandraya's first time and Nixon's first time I think. An enjoyable time was had by all. I loved to watch the kids and there excitement with everything.

Nixon's first airplane flight

Drew took Shandraya, Nixon and I to the airport and dropped us off. We did the usual check in and then hung out at the airport for a little while. So many people commented what a cute kid he is. He just kept looking out the window saying airplane, airplane. We got the front room seat from Lubbock to Dallas. The flight attendant said I had to put my purse in the overhead so he did and Nixon didn't really like that. He kept asking where my bag was. I couldn't get my purse down during the flight because the "fasten your seat belt" sign never went off, but we did just fine. When we got to Dallas we got off the plane and walked around for about an hour and a half. Bought a happy meal and then back onto the plane to El Paso. We sat farther back because we had B seating. We had the whole row to ourselves so Nixon had a little more room to move around and play with his happy meal toys. Landed in El Paso and had to stay on the plane so we just moved up to a closer seat near the front so we could get off quicker when we landed. We had only been up in the air about one minute and Nixon fell sound asleep and slept until we landed in Phoenix. He was a great traveling companion.

A wonderful week in Texas

This past week has been so full of fun and excitement. Shandraya and I flew out to Texas to help Tiffany with her new baby Harley and Nixon. We also got to enjoy Trevor and Brandi's family and their wonderful little boys, Bentley and Cannon. We were busy everyday doing fun stuff. We went to the science center, the park and flew kites and climbed a huge pine tree, swimming, played a few hands of cards, went to the Ringling Brothers and Barnum and Bailey Circus (The greatest show on earth) played in the yard with the sprinklers, drew on the driveway with chalk. Enjoyed ourselves immensely  but it's always good to get home too.